Everything has been inconclusive so far - we have 1) a strange and relatively unhelpful 1 year old+ medical report (which we knew and had evaluated when we moved forward with her adoption), 2) a couple of physical "abnormalities" (ie birthmarks), 3) zero developmental concerns, 4) zero cognitive concerns, and 5) a drifting or lazy eye.
There has been some debate on whether or not we should do an MRI. The ophthalmologist did not feel it is warranted from her exam today. She found that Emmi's optic nerves look exactly the same but they are not absolutely the best they could be - they are "slightly pale" (but it is bilateral and could very well be her baseline normal). She was willing to do the MRI though, based on what we wanted and what she knew our other doctor wanted. The IA specialist told us that we should do one if her optic nerve is pale and if it's not, than she wants to consult with a pediatric neurologist and see if he thinks we should do an MRI. She also stated that Emmi is doing wonderfully and is a developmental pediatrician's "dream."
The long and short, we have an MRI (under sedation) scheduled for March 27. No one can tell us what they are looking for or what we should be watching for - literally their words are, "I don't know." We have no concerns at this point with her development and cognitive abilities. I feel like it's just a puzzle to the doctors. My gut is that they don't want to miss anything and while one thing alone wouldn't give them pause, the combo is interesting and somewhat concerning. We know that they could find something on the MRI and we were aware of that when we became fully convinced that she was our daughter.
Oh and back to the eye (which has been noticeably better lately), we will be patching her "good eye" (left one) for 2-4 hours per day and will visit the ophthalmologist again in 3 months. We will also see her regular pediatrician for her 2 year check up next week - whew, this girl is a trooper!
In the mean time, we continue to enjoy our sweet girl - what a joy she is! I love watching her with her brothers - they ADORE her. C said to me today, "I just love her so much" - warms this mama's heart.
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| Her hair is getting a little thicker and growing since this picture in China! We have been home for 6 weeks! |
1 comment:
I'm glad you are going to get the MRI. That, hopefully, will answer some questions and keep you from wondering the worst. Of course now you have the MRI hanging over your heads and the interpretation of it. Ugh. But, at least you will get information. Hopefully, there is nothing of concern and it's so good that she appears to be completely normal with development, etc. Will be praying for you guys and looking forward to hearing the report.
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